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Statements

Subject Item
n2:RIV%2F65269705%3A_____%2F09%3A%230000839%21RIV10-MZ0-65269705
rdf:type
n3:Vysledek skos:Concept
dcterms:description
Effective planning of clinical trials requires an appropriate number of patients who fulfil given inclusion criteria. In the case of so called %22orphan%22 diseases, such as Duchenne and Becker muscular dystrophy (DMD/BMD), the number of suitable patients within one country is usually limited. We developed a detailed registry of Czech and Slovak DMD/BMD patients which may contribute to cooperation on the European level. The registry uses internet and database technologies with a multilevel architecture. Patients may view their own data. As of May 2008, 163 patients have been registered in the database. The registry provides a detailed phenotypic and genotypic description of patients. The main purpose of such a registry is the time-effective recruitment of eligible patients for a clinical trial or therapy and may allow the anticipation of possible future effects of appropriate therapy on individual patients Effective planning of clinical trials requires an appropriate number of patients who fulfil given inclusion criteria. In the case of so called %22orphan%22 diseases, such as Duchenne and Becker muscular dystrophy (DMD/BMD), the number of suitable patients within one country is usually limited. We developed a detailed registry of Czech and Slovak DMD/BMD patients which may contribute to cooperation on the European level. The registry uses internet and database technologies with a multilevel architecture. Patients may view their own data. As of May 2008, 163 patients have been registered in the database. The registry provides a detailed phenotypic and genotypic description of patients. The main purpose of such a registry is the time-effective recruitment of eligible patients for a clinical trial or therapy and may allow the anticipation of possible future effects of appropriate therapy on individual patients
dcterms:title
Characterization of the DMD/BMD patient population in Czech Republic and Slovakia using an innovative registry approach Characterization of the DMD/BMD patient population in Czech Republic and Slovakia using an innovative registry approach
skos:prefLabel
Characterization of the DMD/BMD patient population in Czech Republic and Slovakia using an innovative registry approach Characterization of the DMD/BMD patient population in Czech Republic and Slovakia using an innovative registry approach
skos:notation
RIV/65269705:_____/09:#0000839!RIV10-MZ0-65269705
n4:aktivita
n5:V n5:P
n4:aktivity
P(1M0571), P(GD204/08/H054), V
n4:cisloPeriodika
4
n4:dodaniDat
n13:2010
n4:domaciTvurceVysledku
n14:5589797
n4:druhVysledku
n10:J
n4:duvernostUdaju
n6:S
n4:entitaPredkladatele
n16:predkladatel
n4:idSjednocenehoVysledku
306797
n4:idVysledku
RIV/65269705:_____/09:#0000839
n4:jazykVysledku
n17:eng
n4:klicovaSlova
muscular dystrophy
n4:klicoveSlovo
n12:muscular%20dystrophy
n4:kodStatuVydavatele
GB - Spojené království Velké Británie a Severního Irska
n4:kontrolniKodProRIV
[34B50F22AF71]
n4:nazevZdroje
0960-8966
n4:obor
n15:FH
n4:pocetDomacichTvurcuVysledku
1
n4:pocetTvurcuVysledku
7
n4:projekt
n11:GD204%2F08%2FH054 n11:1M0571
n4:rokUplatneniVysledku
n13:2009
n4:svazekPeriodika
19
n4:tvurceVysledku
Vondráček, Petr
s:issn
0960-8966
s:numberOfPages
5