| Attributes | Values |
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| rdf:type
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| Description
| - Background: The number of MS patients is increasing worldwide. Most of them are in productive age, but they have limited options concerning active inclusion in the workforce. One can expect that increasing their quality of life (QOL) would reduce the unemployment due to MS. Objectives: (1) QOL and subjective quality of work life (SQWL) analysis in patients with MS, (2) main aspects affecting the SQWL identification, (3) suggestion of steps to suppress MS patients inhibition and increase their willingness to work. Methods: The Multiple Sclerosis Quality Of Life - 54 questionnaire and the questionnaire designed by the Institute of Sociology in Prague to detect a SQWL index in general population were used, filled-in by 237 and 199 patients respectively. The reasons for a low employment rate in MS patients were analysed in semi-standard interviews with 5 experts, and in a brainstorming session of a group of 16 MS patients. Results and discussion: It was proved, that (1) QOL depends on the type of MS (relapsing-remitting MS 68%, primary progressive 57%, secondary progressive 53%, progressive-relapsing 43%). (2) A significant difference in the SQWL index was established between employed with MS (7.2 full-time and 9.5 self-employed) and the general population (5.8 and 8.5, respectively), where the MS patients show a higher index as the only alternative to the employment is the disability retirement. (3) The most important problems reducing QOL and productivity in MS patients were identified to be the character, fatigue, change in health, anxiety and depression, ignorance of the disease by the patient, and uninformed public. Implications for patients and society: A handbook %22Facts and myths about MS%22 was published that can help patients to cope with the issues related to MS, motivate them to find jobs, and provide arguments for discussions with employers, colleagues and/or family members.
- Background: The number of MS patients is increasing worldwide. Most of them are in productive age, but they have limited options concerning active inclusion in the workforce. One can expect that increasing their quality of life (QOL) would reduce the unemployment due to MS. Objectives: (1) QOL and subjective quality of work life (SQWL) analysis in patients with MS, (2) main aspects affecting the SQWL identification, (3) suggestion of steps to suppress MS patients inhibition and increase their willingness to work. Methods: The Multiple Sclerosis Quality Of Life - 54 questionnaire and the questionnaire designed by the Institute of Sociology in Prague to detect a SQWL index in general population were used, filled-in by 237 and 199 patients respectively. The reasons for a low employment rate in MS patients were analysed in semi-standard interviews with 5 experts, and in a brainstorming session of a group of 16 MS patients. Results and discussion: It was proved, that (1) QOL depends on the type of MS (relapsing-remitting MS 68%, primary progressive 57%, secondary progressive 53%, progressive-relapsing 43%). (2) A significant difference in the SQWL index was established between employed with MS (7.2 full-time and 9.5 self-employed) and the general population (5.8 and 8.5, respectively), where the MS patients show a higher index as the only alternative to the employment is the disability retirement. (3) The most important problems reducing QOL and productivity in MS patients were identified to be the character, fatigue, change in health, anxiety and depression, ignorance of the disease by the patient, and uninformed public. Implications for patients and society: A handbook %22Facts and myths about MS%22 was published that can help patients to cope with the issues related to MS, motivate them to find jobs, and provide arguments for discussions with employers, colleagues and/or family members. (en)
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| Title
| - Quality of Life and Quality of Working Life in Patients with Multiple Sclerosis
- Quality of Life and Quality of Working Life in Patients with Multiple Sclerosis (en)
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| skos:prefLabel
| - Quality of Life and Quality of Working Life in Patients with Multiple Sclerosis
- Quality of Life and Quality of Working Life in Patients with Multiple Sclerosis (en)
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| skos:notation
| - RIV/68407700:21460/12:00193897!RIV13-MSM-21460___
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| http://linked.open...avai/predkladatel
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| http://linked.open...avai/riv/aktivita
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| http://linked.open...avai/riv/aktivity
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| http://linked.open...vai/riv/dodaniDat
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| http://linked.open...aciTvurceVysledku
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| http://linked.open.../riv/druhVysledku
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| http://linked.open...iv/duvernostUdaju
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| http://linked.open...titaPredkladatele
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| http://linked.open...dnocenehoVysledku
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| http://linked.open...ai/riv/idVysledku
| - RIV/68407700:21460/12:00193897
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| http://linked.open...riv/jazykVysledku
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| http://linked.open.../riv/klicovaSlova
| - Multiple Sclerosis; Quality of Life; Quality of Working Life; MSQoL-54; SF-36 (en)
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| http://linked.open.../riv/klicoveSlovo
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| http://linked.open...ontrolniKodProRIV
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| http://linked.open...in/vavai/riv/obor
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| http://linked.open...ichTvurcuVysledku
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| http://linked.open...cetTvurcuVysledku
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| http://linked.open...UplatneniVysledku
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| http://linked.open...iv/tvurceVysledku
| - Poušek, Lubomír
- Mezerová, Veronika
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| http://localhost/t...ganizacniJednotka
| |
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